The XXYY Project

Purposeful, productive lives for males with XXYY

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Information for Parents


Receiving a diagnosis of 48 XXYY evokes different responses in different parents. Oftentimes, the medical information given to parents is scary. Some parents feel relief in finally having an answer to their son's difficulties, while others are filled with fear about their boy's future. 

It is important for you to know that most of the research you may have been shown on XXYY is not only outdated but also was conducted in prisons. Most are single case-studies. Our goal is to change that.


Whether you are an expectant parent of an baby with a diagnosis of 48 XXYY or have just received a diagnosis, other parents are here and willing to support you. 

If you would like to see some baby pictures, click here.


Join Our Parent Support Group


The XXYY Project operates an e-mail based support group for parents of males with XXYY. To join the group, you will need to click on the link shown below.


Click To Subscribe to the xxyyparentnetwork support group

The XXYY Library

Parents who have registered with the XXYY Project also gain exclusive access to the XXYY Library.  The XXYY Library is a members only website with resources available to XXYY Parents.


Click here to get to the XXYY Library.

Click here if you would like to email the library administrator because you are having problems (ie can't find your password or logon information)


Read a poem by one of our parents:


  Document
A Poem by a Parent


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